Welcome to our sometimes ridiculous, but always entertaining ramblings. Robin was diagnosed with Chronic Lyme in 2014, her daughter Jess (me!) was diagnosed in 2017 with the same douchy disease. Robin has a doctorate in Education and Psychology – Most of what you hear or read from her will be very helpful in navigating Lyme hell. Jess – well, I’m a little less educated and a … Continue reading Laughing makes Lyme suck a little less!
My gift to all you Lymies out there…..written last year when I was in remission…… Tis the Lyme before Christmas when all through the land, Few Lymies are stirring, some too tired to stand. They barely have energy to decorate at all, Since Lyme’s fatigue and pain cast a constant pall. Many anxiously lie awake in their beds, While visions of medical bills loom in … Continue reading Tis the Lyme Before Christmas
Hi everyone! I haven’t posted in a while. My last post was right before Christmas when I was feeling so good physically and mentally. I was off all meds and feeling like myself. Then, I got laid flat. Last October, I was bit by yet another tick. It was in my back for days before I found it. I had the tick tested and the … Continue reading When Lyme Disease and the Coronavirus Team Up….Parents Need Help.
Based on Twas the Night Before Christmas by Clement C. Moore My gift to all you Lymies out there…..SHARE TO MAKE AWARE Tis the Lyme before Christmas when all through the land, Few Lymies are stirring, some too tired to stand. They barely have energy to decorate at all, Since Lyme’s fatigue and pain cast a constant pall. Many anxiously lie awake in their beds, … Continue reading Tis the Lyme Before Christmas
Hello to all our followers and recent new friends! We haven’t posted in a while here as we have been feeling ok for the most part and a bit distracted by life. We have been working and going to school and living life’s events. I was coasting along through my third remission and enjoying raising my Maine Coon babies. Then, Babesia decided to strap into the … Continue reading Robin Reflects on Riding the Lyme Roller Coaster STILL on Mad Lymies Anniversary
Oh, the bliss I felt when someone (my angel Lyme-Literate doctor-LLD) finally helped me. I was sitting in his office with an eye infection, heart issues, severe headache, stick neck and joints, IBS from hell, muscle cramps, thyroid issues, raging night sweats, some serious irritability, fevers and chills, impaired memory and cognition and debilitating fatigue. Then, I got the gold standard of blood test panels … Continue reading Lyme Disease Hangs Out With Some Crazy Coinfections!!!
Hello again! Did you miss me? I have been quite busy living everyone else’s lives for them LOL. I have been taking care of other people’s houses, pools, pets and kids. I could only do this because I have been living the Lyme Dream known as remission for about 2 weeks. Hopefully, the Lyme Nightmare will stay away for a while longer. But, in the … Continue reading BEWARE: Lyme Disease Puts Your Whole Freaking Body Under Siege! You Could Have Lyme If….
These flowers from Jess made me smile on a pretty bad Lyme day. I really hate when people say I need to embrace my new normal. Personally, I really loved my old normal. We were besties. I was physically fit-well I ran and ate semi-healthy if you ignored my staple lunch of coffee and chips. I was always full of energy and not good at … Continue reading If You Love a Lymie……Helpful Hints to Navigating Your New Normal!
On 8/13/14, I was leaning against a wall in a second doctor’s office, too exhausted to even hold my head up. I was dizzy and short of breath with recurrent heart palpitations. I waffled between sweating profusely and shaking uncontrollably from chills and my head was absolutely killing. The first doctor had been “impressed with my degree of illness” but said it must be a … Continue reading Local Docs Say Lyme Literate Docs are Lunatics! This Mad Lymie Calls Bullsh*&$#!
(Post warning – some photos in this post may be unsuitable for all audiences.) As you all know I have been down for the count the last week. This is not the first time that I have had this happen but it doesn’t get easier. Aside from the guilt that comes from missing things like work, family obligations, and activities with friends there is also … Continue reading You want me to never eat donuts again?